Corbin is an 9 year old boy living with Diplegia, a moderate form of Cerebral Palsy. This blog touches on what Cerebral Palsy means for our family and the lengths we are prepared to go to to give our beautiful boy a brighter future.
The Life That's Chosen Me (written by Karen Taylor-Good and Lisa Aschmann)
These are the actual words from the song:
"We had such expectations, we would soon be giving birth To the next Chopin, the next Einstein, the greatest child on earth And we'd be the perfect family, soon we'd have the perfect kid We'd never have a challenge or a problem, God forbid Oh but Life had different plans, so I need for you to understand
Don't desert me, don't ignore I need friends now more than I ever did before Show compassion but please don't pity me I'm a parent just like you, it's true But I have special needs
I need you to notice that my life's different from yours I need you not to judge me, don't condemn and don't keep score I'd love an extra pair of hands, or just a hug or two I need you to acknowledge that I carry more than you Got the world here on my back, so I just thought I would ask
Don't desert me, don't ignore I need friends now more than I ever did before What you take for granted comes so hard for me I'm a parent just like you, it's true But I have special needs
I need answers, I need help, it's so much work And a miracle or two sure wouldn't hurt
Don't desert me, don't ignore I need friends now more than I ever did before It's not the life that I'd have chosen, but it's the life that's chosen me I'm a parent just like you, it's true But I have special needs
I need you to listen, I need you to care I need your understanding, I need you just to be there I need your friendship, maybe a hug or two Oh God I need a miracle.........
Its quite true and every special needs parent out there will agree with me...
Corbin has outgrown his current manual wheelchair and we have just found out that he is going to get a power chair - how cool is that. It will give him so much more independance especially at school. No more relying on others to push him around at morning tea and lunch time and he will be able to get to the toilet on time without assistance. Wow he might even be able to keep up with his friends at school. It will also give him heaps more independance when we are out and about, especially on surfaces where he really struggles to self propel - like grass at the park or even around our own house. He is so excited and so am I.
We have just been away for the Easter weekend, staying with friends in Te Anau. As always it tears at my heartstrings when the kids are out riding scooters and ripsticks and he is struggling along behind in his wheelchair trying to keep up. We did an Easter egg hunt around the section and everyone else is running around scooping up the Easter eggs and Corbin is left to be pushed around by his Mum because its too hard to self propel on the grass and he can't crawl because the ground is wet and he has had a bad cold. And then everyone decides to go on a short bush walk - I tried to suggest that Corbin and I will just wait for the others but Corbin got upset so I decide to check out the track and managed to push him around it but not without significant effort on my part and lagging considerably behind the other kids at best. All these things will be possible for Corbin to do independantly with a power chair. I can't wait.