Corbin is an 9 year old boy living with Diplegia, a moderate form of Cerebral Palsy. This blog touches on what Cerebral Palsy means for our family and the lengths we are prepared to go to to give our beautiful boy a brighter future.
Tuesday, August 31, 2010
Another Broken Arm for Miss Livee
Yes, after 3.5 hours at A & E tonight we have discovered that Miss Livee has broken yet another bone. Her left arm again. This time due to a fall while roller blading in our driveway. That is now 2 broken arms and 2 broken bones in her foot. She has a glow in the dark cast this time. Awesome effort my darling accident prone child.
Wednesday, August 25, 2010
The Budding Artist
Nothing to report this week so I have instead decided to put a photo of Corbins self portrait on the blog. All the children at school did a self portrait last term and I am lucky enough to get to bring them home this week and of course display it with pride for all to see(?)
Looks just like him don't you think???
Looks just like him don't you think???
Wednesday, August 18, 2010
Winter bugs ...
Well we couldn't quite make it through the winter months without any colds or flu's again this year.
Corbin started us off with a horrible cold (that led to a chest infection and ear infection for him) and has today returned to school after 12 days sick. He managed to pass the cold on to Master Jay, his Dad, then me and finally Miss Livee.
With a sore throat that feels like I'm swallowing razor blades and a head that I'm sure is going to explode I'm not much in the mood for blogging so thats it for this week - very short and sweet.
Corbin started us off with a horrible cold (that led to a chest infection and ear infection for him) and has today returned to school after 12 days sick. He managed to pass the cold on to Master Jay, his Dad, then me and finally Miss Livee.
With a sore throat that feels like I'm swallowing razor blades and a head that I'm sure is going to explode I'm not much in the mood for blogging so thats it for this week - very short and sweet.
Wednesday, August 11, 2010
Corbins Paediatric Check Up
In NZ we visit the Paediatrician once a year for him to monitor Corbins progress. Our annual visit was today.
For the past couple of years we have gone through the usual round of questioning. Along the following lines:
"Are you doing physio every day?" Yes (white lie)
"You know how important it is to do stretching everday to maintain Corbins flexibility?" Yes (another white lie because I don't agree)
"Have you had an orthopedic check up recently?" Yes - last year just after we saw you (this is true but I left out the part that I cancelled the one we were meant to go to in March)
"Are they (Orthopedics) going to "try" botox?" No they wanted to do an achilles release but I would not agree to the surgery.
"Why is that?" Because he can get both ankles to 90 degrees so I fail to see what benefit this surgery would give. At this point pediatrician has a look at Corbins legs and does a few basic stretches and some "manipulation".
"He really does have quite good flexibility and a good range of motion doesn't he?" Yes
"I would be inclined to agree with you - an achilles release isn't the right option at this time. Are you still travelling to Australia for treatment?" Yes (well define treatment!)
"Do you ever see a doctor when you go?" No (the truth)
"Are they more physios and the likes?" Yes (well kind of!!!)
"Well keep doing what you are doing because its obviously working" (I know that!!!)
Well thats it for another year I guess. I can't wait for the day when Corbin walks into his clinic and then maybe the orthodox medical profession will be ready to listen to the real truth about ABR ............
For the past couple of years we have gone through the usual round of questioning. Along the following lines:
"Are you doing physio every day?" Yes (white lie)
"You know how important it is to do stretching everday to maintain Corbins flexibility?" Yes (another white lie because I don't agree)
"Have you had an orthopedic check up recently?" Yes - last year just after we saw you (this is true but I left out the part that I cancelled the one we were meant to go to in March)
"Are they (Orthopedics) going to "try" botox?" No they wanted to do an achilles release but I would not agree to the surgery.
"Why is that?" Because he can get both ankles to 90 degrees so I fail to see what benefit this surgery would give. At this point pediatrician has a look at Corbins legs and does a few basic stretches and some "manipulation".
"He really does have quite good flexibility and a good range of motion doesn't he?" Yes
"I would be inclined to agree with you - an achilles release isn't the right option at this time. Are you still travelling to Australia for treatment?" Yes (well define treatment!)
"Do you ever see a doctor when you go?" No (the truth)
"Are they more physios and the likes?" Yes (well kind of!!!)
"Well keep doing what you are doing because its obviously working" (I know that!!!)
Well thats it for another year I guess. I can't wait for the day when Corbin walks into his clinic and then maybe the orthodox medical profession will be ready to listen to the real truth about ABR ............
Saturday, August 7, 2010
Another Busy week comes to a close
My beautiful Miss Livee turns 10 tomorrow. We are in the middle of a 3 day birthday!!! Last night she had 3 friends for a movie night and sleepover, I've just dropped the last home and I'm in the process of preparing for a family dinner tomorrow, being her actual birthday. Again I sit here with a headache thinking why on earth do I keep doing this to myself. And then the answer is easy - because its her special day and I want her special days to be something she will remember.
So Miss Livee - I hope you have a lovely birthday "weekend" and please, please stop growing up so fast!!!!
So Miss Livee - I hope you have a lovely birthday "weekend" and please, please stop growing up so fast!!!!
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